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last friday night wasn't fun

SisterNeko's picture

but there seems to be hope. FDH talked to SS7's Therapist last night and what she had to say was interesting.

Here is what went down last Friday. Now the therapist warned us that the first week of school would be stressful for SS7 and there could be some issues. Well this was not what we expected. He come into my bedroom where I was on my computer and told me that he was hot. It's fall and I had all the windows and falls on so I thought the house was pretty cool. I asked him what else he wanted me to do and he started crying. I told him that he was over tired and if he didn't feel well then he needed to go lay down. He asked for an ice pack and I said no, he wasn't sick it was ll in his head (like the therapist told us to do) Well he lays down for 2 minutes and get up, says he is fine and I tell him no lay back down for 10 minutes. he gets up again to see if 10 mins are up so I say no and now it starts over. When FDH got home some time later SS7 goes up to him and tell him that same thing - he is hot. FDH tells him that same thing I did, the house is not hot and he add that SS7 should just go take it easy. SS7 asks for ice water to cool himself down so he slams 2 cups and 20 minutes later walks into the hallway and throws up. FDH was in the bathroom so I tell SS7 to get in the kitchen, by the sink or trash can. He starts crying and asks if he is in trouble. I told him no but get on the tile floor, it's that same thing I do with the cats. FDH comes out we clean SS7 up and put him in bed. he cries again that it came out his nose, we tell him that happens some times. He begs to have him temperature taken but we tell him he has to wait a little while because he drank the cold water. We finally take it - no temp. We made him stay in bed the rest of the night, got him up once to feed him toast and he slammed another cup of water - FDH told him not to slam it and he said that it helps cool him down. He was in bed by 7. The next day it was like it never happened. He ate well and wasn't any whiner than usual.

He also started doing that weird thing that he does again last week so Sunday after we returned them to BM FDH and I sat down and documented the whole week and included videos of him doing that weird thing he does and I gave it to the therapist Monday.

Therapist called last night and talked to FDH. She said that it sounds like a panic attack happened Friday, he got so worked up he made himself sick. She was worried because it sounded like SS7 didn't use any of the 'tools' she had taught him in therapy. She added that BM did bring him last time and didn't make a followup like they had talked about, in fact BM kind of made it sound like she wouldn't see him again. FDH was honest with Therapist, told her that he would talk to BM and then he would call her to make an appointment in a few weeks because he didn't trust BM to do it.

The Therapist took a real interest in the videos. We had talked to her about it but it's hard to discernible, seeing it is a whole other story. FDH added that BM claims that he doesn't do it at her house and when he described it to her BM called it 'his happy feet'. But The Therapist noted that same thing we did, if you look at his face when he does it, he doesn't look so happy. Therapist asked if she could show the videos to the Psychologist and FDH said yes. FDH also told her that we showed the videos to SS7 pediatrician last year and he wanted to test him for Autism (which is what SS5 has) But BM refused to have him tested.

We are going to wait (and document) until October then try to get SS7in to see Therapist again.

This is just getting to be too much for me to handle, it's like walking on egg shells when he is here, you don't know what is going o set him off.

Comments

SisterNeko's picture

Also FDH admitted recently that he used to look forward to SS7 coming over but now he gets nervous when they are here that something will happen and SS7 with have an attack again.

LRP75's picture

what is the "thing he does?"

I'm sorry, I don't know your whole story...

SisterNeko's picture

He runs back and forth or bounces in place, while making this weird moaning noise and flapping his hands. (Hand flapping is consistent with autism) His eyes go cold and distant when he does it and his mouth is tense. Not like a smile or an happy face.

Apparently he doesn't do it at school (we have asked) but i have seen him do it at home, in the car, while out walking, while watching tv, and while playing video games.

If you ask him to stop he will for a little bit but then he starts doing it again when he thinks you aren't looking. We asked him why he is doing it and he says he is excited.

When I moved in 2 years ago I saw him do it and I asked SO about. He just shrugged and said it was just something he does, then it got worse (more frequent). I sat SO down and told him that it was weird and should probably get it looked at. I started video taping it and showing it to SO, since he wasn't always around when he did it. When you watch the videos you can really see what he is doing. I wish I could so them to you guys but I can't.

SisterNeko's picture

I don't know, but SS5 was diagnosed with High-Functioning Autism a while back and when I read through the 'signs' i can honestly say SS7 could fall into the category. SS5 was genetically tested for ASD but he does not carry the genetic marker but if BOTH children have ASD (or ASD symptoms) it makes me wonder if it's biological or environmental (the signs of ASD not ASD it's self)

SisterNeko's picture

Yeah I could see this being the issue with SS7. We have tried to limit his TV and video game time but BM does not. Last week when he was here we stopped allowing him to play his DS AND watch Tv at the same time. He had to pick one or the other he did not like that. I try to shut the TV off for periods of time during the day but it seems to make him worse. He follows me around - so bored then cries when I tell him to stop and go play with toys. I get mad when he does that and threaten to throw all the toys away since he doesn't play with them any way. We have start refusing to buy him new toys because he does not play with them but still wants us to buy them for him.

But I told FDH and he agreed we would feel better if we knew what we were dealing with.

I did see this online though

Autism runs in families. The underlying causes, however, are not known. Potential causes under investigation include:

Inherited genetic conditions
Other medical problems
Environmental factors