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Dealing with Autism

Maxwell09's picture

I don't know much about Autism and I hopped over to the "Stepkids with disabilities" forum and it just didn't have exactly what I was looking for so I thought I would ask the general page since I think theres a few of you who know/deal with Autism on some level.

Autism in a three year old, what are the signs? What are the common battles you face as a parent of a child growing up with autism (step or not, both are helpful). Is anger a common trait as well as delayed speech and language skills? If you are the parent of an autistic child, can you share some of your troubles when dealing with an autistic child in split-family relationship such as: does having the child go back and forth between mother and father's houses make it more difficult assuming autistic children need constant structure-something that seems to fall to the wayside for all COD? At the age of three is it possible to receive a diagnosis for autism?

To give you an idea: the child just made three years old, he says a few words such as: "mom" "stepdad's name" "grandma" "dad" "brother/sister name" but other than that there is mostly indistinct jabbering. No ABCs, no singing, not hitting "normal" language milestones but can run/walk/play, aggressive towards other children/people and has been kicked out of daycare for biting. I cannot tell if this is autism or if this is just a speech delay so I would like to know as much as I can to educate myself.

Head up: this isn't about me, my son or my stepson...but I would still like to know.

Comments

Maxwell09's picture

Naturally. As of right now, the pediatrician sent a referral to a place that does ABA/Speech/Behavior evaluations but it takes up to 3 months to get in there for it. They are backed up as is the other few in the area from what I can only assume as congestion. They work with so many disabilities and test for so much that there are a lot of children to see and not as many doctors to see them.

ChiefGrownup's picture

I wasn't around when ss was 3 but I can tell you some things picked up from DH and other mothers I know. What is his "attending" level? And by that I mean is he engaged with the world around him. Does he show active curiosity about his surroundings when in a restaurant or somewhere new? Or is he content to stay with own thoughts and not particularly focus his gaze anywhere that isn't very close to him (a food item on his plate for instance versus the novelty of a soda fountain a bit yonder).

Does he engage with other faces? Children learn pretty young to read faces and so turn toward them for cues to understand their world. But an autistic kid seems to have not gotten the memo. An autistic kid will typically need to be told a thousand times to "look at me" even during highly positive interactions. When answering will he speak facing away from you with no awareness that you might not be able to hear him that way?

Meltdowns are common for autistic children but I wouldn't describe it the same as "anger."

Maxwell09's picture

I was told "he is a very angry disturb kid" but when I've encountered him at the ball field he was wandering around looking at things that fascinated him like bleachers and other kids. He engages with his family members and has come up to my own son. Not to share his ball but to show his ball to us. When his mom speaks to him he doesn't look at her. He avoids eye contact for the most part when talking to an adult figure. From what I can see there is an obvious speech delay but I don't think I would categorize him as autistic more so "Marshmellow/Disney" parenting going on, but then again I know absolutely nothing about autism.

ChiefGrownup's picture

Well, it would take an expert and some testing to know for sure.

This is an older age but I can give you an incident that displays some key features. I was at an autistic boy's house, 10 years old. We had brought ss11 over for these 2 guys to connect somehow. This boy had 2 younger brothers, both neuro-typical.

Our visit was a bit exciting for the 2 younger brothers. So novel for big brother to have visitors! They bounced around trying to get a read on us. Big brother didn't take much notice of us unless directly engaged and then it took some effort. Polite and calm, just more in his own head, rather blank affect.

At one point we were sitting at a table for treats. I was trying to engage the 10 year old, my ss's peer, in some specific conversation that should have been of interest to him. I vividly remember his 8 year old brother looking from 10 year old's face, to my face, and back again several times. He was clearly trying to suss out the situation. Even though he was younger, he figured out that if his brother would respond to me, something pleasant would happen. This little guy jumped in, "brother, brother! you need to tell her xyz! Brother, brother!"

You could see the inquisitiveness on the 8 year old's face. You could see the wheels churning in his head. You could see it was automatic for him to read the faces for help in what was going on. You could see him decide (in his head) that brother just wasn't understanding or projecting the benefits to come. You could see that he himself understood my messages perfectly AND that I was HOPING for a certain response from the autistic brother. That is a lot of emotional/social comprehension. The 8 year old could read MY emotions and make projections based on that though he'd never met me. And these were all processes he could manage like a virtuoso even in the chaos of all the people including visitors and the bouncy 6 year old 3rd brother.

These are things his brother could not do, though 2 years older. It's a good vignette, at least in my own mind, to display the differences between on-target childhood development and autism. I can so clearly see in my mind's eye the calm, not defiant at all just far-away face of the one brother compared to the eye contact, face reading, super-engaged face of the younger one.

So just the little you've posted the above incident doesn't seem like it would describe the kid you're worried about.

Maxwell09's picture

See this is why I am not so sure he actually is autistic. When he came up to me and BS, he noticed BS's toy and wanted to play with it. They are a year apart in age. I handed him the toy to look at and then when his mother called him back I asked for it back. I could tell he comprehended what I said just as my bio did, he hesitated but then gave it back begrudgely before his stepdad approached to take him away from us. I couldn't understand what little words he spoke but then again I can imagine there are people who don't understand my toddler either. My son, 2, is making two to three word sentences which is normal. This boy is not. It's more like one word sentences. Or a real word followed by a bunch of jabbering. I did work with a boy for about a year or so who was delayed but he was four at the time. I instantly could tell with him; the way he looked at bubbles, the screaming fits when his dad picked him up earlier than usual or instead of his mom. He spoke slow and deliberately like you mentioned as well but it was four year old speak so it was more like him putting word puzzles together in his mind as he was speaking. This boy, I'm asking about in the OP, I don't get any of this from at all.

Maxwell09's picture

I was shocked when she told me he was disturbed/very angry little boy. He seemed happy to me but I only say him a few days a week for a few months. Like most toddlers, he's happy when he gets what he wants and no one is stopping him from doing whatever he's doing. The examples below help my perspective a bit.

jmh302's picture

My son is autistic. He was diagnosed a few months ago officially but i knew since last year.

My son is non verbal. His stim is jumping.

Autism presents differently in every child. My son has 0 problems with transitions..except if we turn off a show he was into. He could handle going to different houses.

He has no anger problems except he does bite when frustrated because he has no way to communicate. He does not hit and is actually happier then my "normal " son.

Early diagnosis is key to helping these children. My son was very clearly autistic. He will bring us things but in a way like help me not check this out.

On walks, he will just walk along smiling or stop and inspect something but he couldn't care less if we saw or were interested.

He loves games like ring around the rosey but he won't play pretend at all. He really only interacts with people if he needs or wants something and if its something he can do himself it is like people are not there.

Maxwell09's picture

Thanks for your response. The examples help me understand a little more. When the stepmom told me he'd been moved from yet another daycare for biting I told her that biting doesn't necessarily mean he's autistic but that we (when I was a pre-school teacher's aid) were told they were more exasperated that whoever they were communicating with couldn't comprehend what they wanted or it was plan revenge biting. She said it's a little of both. He was caught biting his sister in retaliation for her hitting him, at daycare it was for communication barriers. This child seems lack-si-daisy (?) /cheerful whenever he's getting whatever he wants but the second his parent tells him "no" he lashed out. I've heard he transitions from Dad back to Mom's custody really badly. Screaming and tossing himself around.

jmh302's picture

My son does bite in retaliation at daycare if a toy is taken or someone invades his space. He really does not understand. He wears a bite bib and has started to bute himself to the point that he has a callous in his knuckle.

There are things that can help transitions.. or change. My son dislikes shopping because he is strapped in so he gets doritos in the store. I know alot of autism parents utilize tablets..but i am not so sure that is the way we will go. We are just starting out using pictures to help him communicate its called pecs.. i tried for a year to do signing with him but it didn't click.

Maybe that child is having a meltdown. My son thankfully so far does not have meltdowns. Only 1 time he has. nothing could make him stop. I finally strapped him in his car seat and drove around till he fell asleep.

I have bought weight vests for my son and we have been trying brushing... it helps him focus. At a inflatable jump house he jumped then would focus on a puzzle quietly. My son has sensory issues and he isn't getting enoufh information from his enviroment. He mouths everything. Everything has to touch his mouth..which is why he is sick with strep again!

When he was first diagnosed i read a book called the reason why i jump and it helped me visualize a bit more what might be going on with my son.

Luckyone's picture

I have a high functioning aspie. I don't see anger issues but I do see frustration. I can remember the week when my son cried all day every day and then suddenly he was just... different. He was 18 months.

My son is 9. He is socially a little backward, misses some cues, but mostly it is because he is so in his own little world it is hard for him to think of others. He certainly does not lack empathy but struggles to show it. Something bad will happen to his little brother like taking a fall, and he won't react but will later bring it up, telling his brother that he felt bad that he got hurt, or will say he was sad that his brother cried. He needs time to process.

He is not physically affectionate but will 'sidle up' and just squish his body against me. He doesn't like being hugged but craves contact. When I make him hug me in a silly way he will giggle in a higher pitch, he sounds like a babbling brook, and hug me while rolling his eyes.

He gets overloaded when too much is going on and start to panic.

He absolutely does not like change. We travel a lot on vacations and he is always freaked out. Sometimes he gets so strange we call him RainMan but where man is we insert his name.

He has food issues, he doesn't like anything runny, no sauces, no cheese, his meat has to be cut in squares with no fat. He eats like he has been in prison, guards his plate with his arm, head down because he can't stand to watch others eat. He obsessed about fat content and calories, doesn't want to gain weight, but because he is only nine doesn't realize that chips are bad for you. He just sees potatoes. Lol. When he was a toddler his favorite treat was frozen broccoli florets straight from the freezer like a popsicle.

He has a huge vocabulary, one that sets you off guard. He is the smartest person I know. He knows every fact about WWII. Every tank, every gun, the key players, the battles, the dates. He retains things that I cannot believe and has memories from very early. He is very artistic. He loves math. When he gets overwhelmed at school the teacher said he could sit in the hall where it is quiet to calm his mind. He said "I don't think I would be interested in languishing in the hall while my peers are learning". He was 7. His teacher at first thought he was not paying attention and would ask him questions to catch him, he always had the answer. He hates writing. She once gave him an incorrect sentence and told him to write the sentence properly. Instead he corrected it like a teacher, crossing out the mistakes and circling errors rather than write it. When she asked why, he said "It is a waste of time and pencil lead".

He is very polite and sweet. Very interesting to converse with. But he does have meltdowns. When that happens he is like a dog with a bone. His older brother put his arm around his shoulders and steered him to the kitchen and my aspie spent two hours talking on and on about how his older brother very nearly choked him to death.

He also toe walks to the point of having misshapen arches like a ballerina and holds his fingers in a weird way, counting syllables.

There are a million other little things.

Maxwell09's picture

Thanks for this! I'm really intrigued with your response. He sounds like an amazing little boy and very adjusted. I got a little chuckle with the story about correcting the teacher's sentence instead of rewriting it and his reasoning. As a very literal person myself I can appreciate seeing it in children.

mommadukes2015's picture

Often times with autism there are language issues. It is also not uncommon for kids to hit all early milestones and then begin top regress (losing language etc). Behavior can also be a factor because if the child is acting out they may be responding to overstimulation. However however you have to dephcier what is niormal for the age range and what is not. Children on the spectrum often have difficutly with eyecontact-however my stepson has no issues with that.

What I would do is talknto my pediatrician as it is pretty early for a DX still. You will most likely be referred to early interventiom

ChiefGrownup's picture

I wanted to say something else about the autistic meltdowns. Several of us have distinguished it from anger. I think a good description is that in the autistic meltdown you can see the child's anguish. The screaming, tears, even lashing out is an attempt to extinguish an intensity of misery, not an attempt to hurt or "get back" at someone. The emotion in the child is largely internal with external manifestations rather than an emotion that is actually directed outwardly.

At least that is what I have observed.

Luckyone's picture

I am going to print and memorize this because when I try to describe it, I can't hit home like this did. Thank you so much.