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Is God testing my strength?

justmakingthebest's picture

DD12's migraines are getting worse and not better. She is on the 5th round of medication combinations. We still go to the ER every 4-5 days for rescue IV's. The nursing staff all knows us now. She had to HORRIBLE reaction to compazine yesterday. She has had it every other time and never had anything. She is still a mess this morning. The headache is back, she is puking, I have already missed 2 days of work with her and the specialist that could only see us in his office over an hour away and the ER yesterday. Insurance is fighting this round of RX's. I am just at a loss on how to help her. She is miserable and in so much pain all the time. The Neuro is referring her to a pain clinic.

 

DS13's therapist who has been treating him for anxiety and depression is worried that he may have Bi-polar depression. He is having more and more low dips. She has me watching for a manic episode. The reaction that I got from his father and SM made me want to jump on a plane and punch them both in the face. (And I get along with them very well!). Thankfully DH reminded me that we just adjusted his meds and to give it time and not to panic. I don't know how to help my son.

 

SS19 is driving me up a wall. I know he is special needs. I know he can't drive. I know he can't help 3/4 of the crap he does.  I am human and I am doing my best but with my husband out to sea so much right now I am afraid that I am going to go off on him.

 

BM2 finally emailed DH back about Christmas visitation after he sent the email I wrote and told him to freaking send. All she said was that the dates we proposed were 2 days too long in the break - His response was fine, we will adjust the dates and deal with the 5 weeks of make up time when we go back to court. 

 

SS15 texted his dad apparently around 1 am our time saying he wasn't coming because of basketball. DH's response: Love you kid, but you are coming out for Christmas. I haven't been able to spend Christmas day with you in 7 years. Basketball practice can be made up, our limited time together cannot. By the way, did you ever call and check on your grandmother yesterday after she got home from the hospital?

**MIL had a nasty fall and lost consciousness n Tuesday. She lost memory so they kept her overnight. 

Comments

futurestepmomnowstepgf's picture

hear about your DD. I got migraines a lot as a teenager, not as bad as the ones that your DD gets that I was going to the ER, but they are awful. Is there anything in the enviornment that has changed that could be causing the migraines? I have found over the years there are certain scents of things I did not realize until later that would give me a migraine. 

I hope she starts getting better soon!

justmakingthebest's picture

She started a new school that had major renovations over the summer but I would think more than one student would be having a reaction if that was the case... 

However, apparently her reaction to the meds they gave her in the ER are less than 1% of patients, so who knows! Sad

futurestepmomnowstepgf's picture

my bf is actually like allergic to target as funny as that sounds. He does not get migraines, but he feels nauseous after being in target for about 20 minutes or more. We have been in several targets in several different states and he always gets dizzy, nauseous and feels really sick. So it is either something they clean with or a product they put in their stores, but after about 5 times, I realized it was target specifically.

I work in interior design so I will tell you that anytime there are renovations or new construction, you always have to worry about the off gases given off by materials put in the building. For example, vinyl like for flooring unless a low VOC product, has major off gases which can trigger people to be sick, etc. The off gases that products put off can affect people all differently and it is not always something that you can actually smell to pin point it as a trigger. So flooring materials, paint, anything put on walls, etc. can all give emit off gases especially if they building did not adhere to the waiting time these products need or were not properly treated.

Did this all start when she went back to school?

justmakingthebest's picture

She had a couple right before school was back in session- I tossed those up to stress and time changes coming back from her dad's was a 3 hr difference. They were also taken care of with OTC meds. Things really went nuts after school started... I am going to mention this to the neurologist when he calls me back today.

Thanks! I never tied the 2 until now. 

futurestepmomnowstepgf's picture

It might not be the cause, but once you said about new school and renovations, I was like that could totally be it! Let me know what the neurologist says, I would be interested!

notsurehowtodeal's picture

It is Walmart for me. I think it is the overhead lights that bother me. I can always hear a faint "hum" in Walmart and always feel a little bit "off" when I am in one. Target does not bother me at all. My sister has the same problem with Walmart. Good thing I'm not a Walmart shopper, I can't stand it for very long.

thinkthrice's picture

make me dizzy.  I can see how they would lead to migraines in some people.

thinkthrice's picture

Does she have food allergies?  Is it possible to take her off all starches and sugars to see if it helps?  Celiac disease can also cause bad migraines.

justmakingthebest's picture

No food allergies that we are aware of. She doesn't have any of the other symptoms for Celiac's, so I am doubtful on that... However once of the guidence counselors at her school told me that her daughter has issues with aged foods that they tracked to a trigger. So cheese, she can't have wine, etc. - Who knew?? 

fakemommy's picture

I started having chronic migraines around the same age. They were caused by puberty. Sometimes hormone-induced migraines can be prevented with birth control (sometimes it makes the worse). 

Felicity0224's picture

I am so sorry about your daughter. I had a good friend who experienced the same thing throughout the entire time we were in high school. Her parents spent every dime they had on traveling to different neurologists to figure it out. There was never a specific diagnosis and not a lot of treatment options offered. Then after we graduated and moved into our dorm at university, she never had one again. Whether it was environmental, or they were hormonal and she coincidentally grew out of them at the time of the move, no one ever knew. It was the craziest thing. 

On the IV thing - I'm not familiar with them, but I have noticed a lot of mobile IV services popping up in my city. Most of them are rehydration, hangover recovery, or sports recovery and a lot of people swear by them. Your daughter's pain may be way beyond whatever those IVs have in them, but it might be something worth exploring so she at least doesn't have to endure the ER so frequently.