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OT- Dealing with intruders when family member going through Illness

ESMOD's picture

I know this is pretty OT, but I guess it does touch on how to deal with difficult people.

 

As many of you know, my dad has been very ill.  He was actually in Hospice but is transitioning back to "home health" and is now expected to recover.  Unfortunately, he is still very weak and we have hired people to care for him 24/7 since my brother and I live 2 hours away and can't put our jobs on hold indefinitely.   It's great that he is feeling better and that we have found people to help him get back on the road to recover but we are now dealing with another issue... the "well meaning friends".

I will go back in time a bit and note that my dad has been living 100% on his own prior to this illness (he's 88).  He has never driven, so the only assistance was with errands.  My brother and I did visit him, but it was not a regular thing... maybe 8 times a year give or take.  My dad has a life and friends and he didn't have to rely on us to do stuff for him. I have probably visited more in the past couple of years.. but it wasn't a multiple time a month deal.  I call him daily... but since he doesn't like answering the phone.. it meant I only talked to him once a week or so.  So, to his friends and neighbors, it may have seemed like we were not super "attentive children" but in reality, this was mostly due to my father's independence etc...

Anyway, so now that we are involved in his care... a few of his "friends" have been a bit tough to deal with because I feel like they have more "ownership" over my dad than his blood relatives (me and my brother)... just because they saw him more often than we did.

1.  We have his "closet drinking friend' a married lady in the neighborhood who has been insisting she be allowed to visit severeral time since they were "sooo close".  My dad literally said he didn't like her to much to us and didn't want to see her.  Apparently, he didn't mind having a few drinks with her for company, but doesn't have that bond that she thinks they have.  Keep in mind that my dad was deathly ill during all of this.. including 2 5 day hospital stays and while he was once a strong man.. he is currently pretty bedridden due to weakness from a month of laying in bed and not eating.  So, she has kind of stopped bugging us for now, but I imagine she will continue to try to worm in.

2.  His Ski patrol worker buddy. (over 40 lives with his mom) Who came over when my DH and I were there and mentioned the "chair in that office that we haven't come to terms on".  The chair is worth about 600 to 1000 dollars... hmmm so I saw that as him laying groundwork to say my dad wanted to give him the chair.   Now, he did volunteer to come take my dad's dog for a few long walks.. so my dad asked me to write him a nice check.. which I did ($500).  Of course as soon as I wrote it.. he stopped coming by.  Apparently went on vacation with his GF. 

3.  This is the worst one.  My dad has been paying a daughter of some friends of his to help him by getting his mail from the central mail area and also to take him on his trips to the grocery store.  She has been VERY nosy and has had way too many suggestions on what we should and should not do for him.  Now that my dad is at home and recovering , she has taken to just walking in the house without knocking and going straight back to my dad's room without permission.  She even tried to shave him yesterday and apparently cut his face.  She is going way out of her lane IMHO.  She even contacted my brother and basically gave him the impression that she thought he wanted my dad to die and wasn't getting him what he needed to recover.  Apparently she is bi-polar or something.. but my brother is having enough melt-downs without this beady eyed troll pushing her way into things.  Now, my dad does rely on her for rides etc.. but we have not hired her to take care of him and she needs to butt out but I don't want to sever his ties with her because he has been friends with her parents and she does provide a usefull service. 

 

SOOOO... long story and question is how do you deal with people that feel they have the right to be "in" your family's business?  Especially the third person in this drama (there have been others too.. but these are the worst).

 

 

Comments

notsobradybunch's picture

I can somewhat relate to this. My dad was in hospice after suffering 2 strokes, one at home and the 2nd in the hospital. He passed away just over a month ago. Its a tough situation. I'm out of state, 10+ hours drive away so the distance made it extremely difficult and stressful. My mom passed away less than a year ago so my dad was also on his own. Very independent and seemed to be adjusting well when all of this happened. There were a lot of neighbors/friends who I thought were critical at times that I didn't stay longer to visit or didn't visit often enough. I had to put those "opinions" aside and do the best I could from a distance & get to him as much as I could. I spent a fortune and missed A LOT of work from January to when he finally passed in February. Its tough and only you know what you're going through. The neighbors and friends sound like they have finacial motives. My advice is to get everything in your name if you haven't already. That way you can control money. bills, etc. That will make a huge difference for you and add piece of mind.

ESMOD's picture

I do have a POA with my name on it and removed all the checks from the house and locked up his office (where his wallet is also locked in a safe).  My dad didn't want us to put a lock on the basement office, but when he was heading into hospice.. we figured we needed to do that since no one would be in the home.  My dad is not really hospice any more... but unlikely to go downstairs for a while. I'm hoping he will understand our abundance of caution with all the people going in and out of the house.

In this case, since we expect my dad to survive and he is still pretty much in his right mind... we are at a place where we can't just be there every day.. and he will ultimately have to rely on these people in the future as he has done in the past.  I just want some of them to back off a bit..lol.

beebeel's picture

"I appreciate what you have done for my dad. He is receiving great care at home right now and our family is asking that you respect his recovery by leaving him in peace until he's out of the woods."

I would much rather say, "Back off you vultures!! He isn't going to put you in his will because you were kind for five minutes!!" But that seems less diplomatic.

ESMOD's picture

That has worked with most of the callers and visitors.. he is resting.. thanks for your concern.  The worse issue is the lady who brings his mail who is just blowing into the house without knocking and going straight back to see him without even saying a word to his caretakers.    I know my dad wants her to be used for help when needed, but she is being way too pushy and telling my brother that we weren't doing enough was beyond the pale IMHO.  She is also a friend's daughter.. so there is that extra bit that means we have to be super diplomatic.  I guess at the bottom of it, we just don't like her much and she seems to think she has more right to be there than we do...lol.

We did tell the home aides to lock the door and not allow her to barge through. 

I also did a temp change on his mail since I would be handling things financially.. so she will have less reasons to stop by.  I will keep paying her the $250/month to keep her "on the payroll" but we will not use her for much of anything ourselves... so maybe that will reduce the NEED for her to come by the house.

 

Rags's picture

GM was a very low key lady.  My parents wanted her to be able to stay in  her home after granddad passed. My dad worked out a deal with his cousin that they would get my grandparents small farm including the house if they lived there, cared for my grandmother, and kept the property well maintained.  The cousin's GF had become a licensed home care aid and had taken care of her own aging parents for a number of years before they passed so it seemed to be a good arrangement.

Nope, the cousin's GF basically did crap for squat for my grandmother.  After nearly a year we had to move my GM to our location so we could all keep an eye on her care and regularly visit with her.

My dad ended  up selling the house/farm to his cousin since they were no longer "caring" for my GM. 

Ultimately moving her to a retirement facility near us was the best outcome.  She thrived there, we all were able to visit her regularly, and we got her away from the cousin's toxic GF. She and the cousin are now married though none of us have much  to do with them.

 

Take care of your dad and don't forget to take care of you.

ESMOD's picture

My dad said putting in rehab would kill him (just like he said he would be dead in 8 hours if we took him back to the hospital.. that didn't happen lol).  So, for now, we are kind of stuck in having help for him at home.. even though we know rehab would be a better option.. he doesn't want it.

It's just a bit more nerve wracking to deal with it from a distance and not being there to oversee all the moving parts.  It's also hard because people don't understand that we have multiple people we are keeping up with and we also have jobs and lives and while dad's a priority... we don't have time to coddle and fill in every one of his acquaintances on all the gory details.  The people that feel they have a right to know everything or see him when he is not up for visitors make it a bit more exhausting.  it's hard enough to just make sure our DAD is ok with how things are going..lol.

 

Aniki-Moderator's picture

Oh my, I cannot begin to imagine the gamut of emotions you're dealing with. Concern for your Dad, distrust for these people, frustration.... It sounds like you are doing your best (and good things) to care for him.

Is there any RELIABLE service available who can take the place of these potential users?

ESMOD's picture

That's the thing we have 24 7 care in place. These people are just friends or in the case of the last woman my dad's mail errand girl.

Aniki-Moderator's picture

Yeah, I'd want those hangers-on to be O-U-T. They seem to be nothing more than opportunists. Sad

Thumper's picture

I have delt with elderly parents, 1 passed away while in skilled care and 1 passed away in a hospice center from accute pneumonia. ALSO went thru the distance factor with the latter. THAT is very very hard.

You have taken important steps...checkbook, POA, locked office etc.

It is very strange they are sniffing around the house. I use that word because that is what they are doing. IT is one thing for neighbors to visit with a meal, or book. OR a short telephone call.  Same goes for close friends. When you visit a close friend who has had surgery....you may offer to clean their house, or cook a meal, run erronds, or sit and read to them.

Honestly I would not give a crap what the so called friends thought. If they were caring, meaningful 'friends' they would check with the nurse first and ask what day is best and what time is best for a short visit.

You could post or inform the nurses that tues/thursdays and Sunday afternoon visitors from 3p until 430pm IF patient is doing well. Readdress visits when Doctor clears dad.

IF they called you and pitched a fit,  I would ask if they are concerned about the care plan in place for YOUR dad?

Your dad is in his 80s...and getting use to a new norm what ever that norm is IS paramount. 

I am sorry...I DO understand.

ESMOD's picture

I think I will ask my dad how he feels about visitors.  Does it perk him up?  Is it tiring?  Any limits he wants.  I will admit that a few people sniffing around do rub me the wrong way and I feel a bit protective over his recovery.  Certainly we don't want a long parade of folks coming in and potentially giving him a NEW illness.  But, if he wants to see people, who am I to really limit what this 88 year old man wants? 

I suppose we will figure it out and hopefully we can get through this without any interpersonal meltdowns (except for my brother's..lol)

 

Thumper's picture

Hang in there, I know it is very difficult. As the child of your 88 year old dad of course your concerned. Heck I remember every time the phone rang I jumped. For years it was this way.  And,  Of course you want to be careful no on brings a respirtory infection, sniffles, intestional bug into your dads place. THAT can be deadly for him. Next year during flu season I would post something on the door.

His caregivers can be a buffer when needed just tell them.

 

notsurehowtodeal's picture

Make sure the caregivers know that you will back them up if they refuse anyone entrance. You can act as the "bad guy" if necessary. The caregiver can say "ESMOD wants her Dad to have plenty of rest, you will need to come back later." I like the idea of designated visiting hours for the time being - that limits the amount of time anyone can be around - so it is not seen as personal.

The door should be kept locked no matter what the circumstances - that will solve the problem with the "mail" lady.

I would enforce a strict sanitary protocol as well. Visitors should wash their hands before visiting and your dad should wash up when they leave. If they seem at all sick they shouldn't come in and if they do, wipe everything down with a Clorox wipe.

It can become a delicate balance between insisting your parent do what you think to right and them wanting to continue to exert their independence.

DPW's picture

I dealt with this when my mother was in ICU for three weeks following a brain aneurysm; she died after three weeks. All her looser friends were hanging out in the private family ICU lounge like vultures, trying to impose their religious beliefs, their opinions on my mother’s care, and their overall negative presence on a very trying time in my life. One woman in particular, who I had never met or even heard from, was in particular quite annoying. I eventually had enough of her and rudely asked her sarcastically “Who are you?” She was taken aback and eventually disappeared.

Her friends became worse when she died, circling like vultures over her stuff. Her best friend was disgusting. My mom promised her the dog. When she tried to take it in my presence, after watching her go through my mother’s belongings with interest on what she wanted and what she could sell for cash for herself, I lost my shit. She later came back for the dog when I wasn’t around.

It’s hard. The above is only some of what I went through. I really recommend setting boundaries and don’t be afraid to be a b*tch. Put people in their place early on so you won’t have to deal with them when your father passes.

ESMOD's picture

Ironically, the woman who was supposed to take my dad's dog if he passed away has now indicated that is no longer a promise she can honor.  To be fair it was a promise many years ago.. but still, it would definitely agitate my dad if he thought that his dog's well being was in limbo.  In the end, I told my brother that my DH and I would take the dog in until better arrangements could be made.

I guess at the bottom of it all, it's exhausting to deal with certain people..like you mention, who have all sorts of advice and input for you and want access to him.  I had to spend time this AM dealing with this woman and trying to inform her that my DAD said he didn't want visitors and we guessed it's because it's too tiring for him.  She then goes into martyr mode that they are "just trying to help and don't mean to tire him out.. blah blah and please tell him WHY she isn't coming to visit."  I'm want to scream at her.. Open your ears.. why do I have to explain why he isn't having a visitor when HE said he doesn't want any?.  And why on earth am I having to spend all this time dealing with YOU when I have a lot of other responsibilities and obligations and quite frankly you pushing in has caused more problems than anything else? 

It's stressful enough dealing with a sick relative and trying to also keep your regular life moving forward.  I'm taking care of all my dad's finances.. coordinating his round the clock care... interfacing with his friends.. keeping my brother in the loop (who is overwhelmed in his own right). and I also have a full time job and a home of my own to manage.  Plus my DH is leaving in a couple weeks for 7 months.. and if I have a spare moment, I don't want to have to deal with placating these people.. I want to spend it with my husband not worrying about things. 

And.. of course, trying to be nice and patient with everyone is also a struggle.. I mean, I know that they are interested in his status.  Whether it is for voyeristic reasons.. vulturistic reasons.. or whether they truly care about his well-being and want to make sure he knows that.  In the end, though it does add up to a lot of care and feeding that adds to our burden of time and effort and it can interfere with his schedule and recovery.