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SD is a luekemia survivor and can't be happy.

invisiblestepmom's picture

My SD is a luekemia survivor. Here s brief synopisis of her story...BM and DH were going through thier nasty divorce after BM cheated on DH and got pregnant by her lover and now current Husband. BM was doing anything and everything she could to keep DH from the kids because he was not paying child support on baby # 3 whom was not his kid. So she accused DH of child abuse because SD was always covered in bruises. DH did not think anything of it because she was a clumsy kid but to cover his ass he took her to the doctor too get an opinion as to if these bruises were from normal 3 year old tumbles or ABUSE...like maybe someone eles was abusing her to frame him but the doctor was concerned and did some labwork and found out she had cancer. They caught it early, probably one of the blessings of thier nasty divorce, had BM not been acusing DH of abuse they might not have caught it until she got sick or went in for a 4 year old check up then would have had it for a year before t was notcied...So she got treatmetn right away. Responed well, went in to remission right away, spent a lot of time in and out of theh ospital because of the aggressive treatments when she was three and four was done with hospitalization by the age of 5 had the standard treatment for two years after remission for a total of three years. She was done with treatment by the time she entered 1st grade. Then had 5 years of observation and remission before being officially declared cancer free in February of 2004...it has bee 5 years since she was declared cancer free and this child still has this poor me I had cancer attitude. Of course so do her parents, they cant get over how scared they were- I get that. They can't get over how awful treatment and not know was- I get that!...But they act like it ruined thier lives forever. My SD right now in some attention seeking remarks claims she cannot remember anythign in her childhood but being int he hospital. She tells people she spend most her childhood inthe hospital...Lets see sheis still a kid. She is 15 and sepnt a week here, a weel ther, a month here a a mnth there off and on a few times for two years...That really is not her whole childhood, that is 2 years max, what about the other 13 years of her life? And dont get me going on all the things that this child has got to do and got given to her because she had cancer. She claims to have blocked out all of 3years old on thru 5th grade because of her cancer treatment. WTF her cancer treatment did not last that long.
Shouldn't she be happy she survived. She does have guilt which I get that she beat it and her frineds fromt he hospital died. But each cancer story is different. Hers I think is a good one because she did survive, WHy can't they focus on the miracle of that? OF course her moving on is not helped by BM...BM and DH both have exaggerated the extent of her treatment and suffering. I am soory if I do not sound sympathetic here but I know kids who died from the same cancer SD had and thier suffereing and treatmetn was way worse than hers. I have seen a lot fo chidhood cancer cases and for SD hers was an easy stroy in comaprison but dont tel her or DH or BM that becasue hers was the worst ever, the saddest, this child lost her hair one time from luekemia and her hair dgre back a little and fell out again...so the chemo made her hair fall out twice. I know because I knew them before DH and I even dated, my mother and crazy MIL are best friends...so they cant tell me I was not there and do not knwo what they went through. I saw ti as an outsider and know they are exagerating. DH says she lost her hair 3 or 4 times. BM says she lost her hair 5 times actually teh amount increases each time the story is told, so I think its up to 7 or 8 times...But you catch my drift...and while SD was sick and going thgouth this BM told her twin brother SS that sissy could go to sleep and die at any moment...YEAH YOU TELL THAT TO A THREE YEAR OLD...See why I have called this woman crazy in other posts...And the sad part of it is SD was never on her deaht bed, she started beating the caner form the get go so it was really SICK of BM to say that to her kids...and she didn't stop saying that until treatement, and remission was over...Even now taht SD is medically declared cancer free BM tells her kids it cans till come back...Ok the reality is it could, which is why she has lab work done yearly and having one cancer as a child can presidpose youto more when you are older, BUT REALLY IS IT NECCESSARY TO MAKE YOUR KIDS KLIVE IN FEAR THAT THEIR SISTER COULD DIE, when she is alive and surviving.
Yeah BM likes the attention drom SD.s cancer so much that she even tells theother kids when they are sick , it coulc be cancer...And now BM gets to be the cancer queen with her own "cancer" I put it in quotatiosn because supposedly this woman who lives a bloc away from me and aI see on a regular basis has suffered three types of cancer in the last five years...I'm sorry but wouldnt' someone with cancer that much be sick, be on chemo drugs that make you sick or something and this cancer filled woman is does not appear to be sick at all, she is the healthiest damn cancer sufferer I have ever seen and I am currently watching family memebrs suffer from stage 4 cancer, so I dont get how you can have three types of cancer and not be sick when I see how sick these people are from one type...

ANY way ALL BM's issues aside, HOW DO I HELP SD move on and be happy that she is alive. I hate seeing such a bright, talented once happy go lucky kid be so sad because she is supposedly havign flash backs from her cancer hospitalization...flash backs or being force fed the story over and over again so her memories are not her own but her moehter version of them...Seriously how many of us remember being 3? How much of it is real and how much of it is attention seeking. I warned peole years ago that they needed to identify this kid as being herself, not as being the kid with cancer because she is more than that, but years later and she is stil the kid who had cancer and really nothing else in her mind.It bothers me that this kid says her whole childhood was robbed, when I think she had a kick ass childhood even with the cancer, and that the cancer only affected a few years, early years that one normally does not remember and all she can focus on is those bad memories from that time...Its like time froze for her, and its about time it unfreezes so this teenager can move on before she is an adult frozen in time. It bother me...I guess because I see cancer patients and the cancer may rob them of thier helath and thier life but they never lose thier spirit, and this child has lost her spirit...and she has no need to. She even had more spunk and spirit when she was undergoing treatment now. So how does this little fighter, and survivor grow up to be so sad...I hate seeing her like this...I hate it too because she sruvived, damn it rejoice and be happy in that...I lost a friend in highschool to cancer, and it was a sad story she went in to the doctor because she was pregnant, was all worrid about telling her dad that she was knocked up and founf out that she had cancer too, she wanted to save her unborn baby so had low dose chemo, but she and the baby died right afte dleivering him and he was still born in..so sad to watch as a teen, its one thing to be a pregnant teen but a pregnant teen who is dying and my friend never once gave up hope or her spirit not once, not even in her last breath...which was to ask if she could hold him and see if he had all fingers nad toes...she wanted to know that even though he was still born he was not deforeme from her chemo...
SO WITH THAT SAD STORY SAID...IT PISSES ME OFF THAT SD'S STORY IS A HAPPY ONE OF SURVIVAL AND SHE CAN"T BE HAPPY. she just focusses on how bad it was to be a kid with cancer, well dear darling SD..it could have been worse, YOU COULD NOT BE ALIVE...AM I BITCH TO WANT TO TELL HER TO GET OVER IT< MOVE ON BE fortunate that you did not die from it and rejoic in life...
sorry for the typoes here I have a 2 year old on my lap helping me...

Comments

Storm76's picture

I suppose it's possible that her earliest memory is of being in the hospital, and with the contact reminders of it then it's not surprising she still defines herself as 'cancer child'. I'm tempted to suggest her seeing a counsellor, or at least getting recommendations for a book for her to read about surviving cancer.

Is there something else special about her that you could start referring to her as 'the little dancer', 'the world best speller' or something? Perhaps when she's a bit older some volunteering with children who are going through chemo now might be good for her, she won't be the special one then apart from the fact that she's come out the other side.

mommommom's picture

I agree with storm but I would suggest family counseling. Sounds like BM and DH need it just as much as SD does so they can overcome the issues of feeling sorry for her also. I can't relate to having a child with cancer and Lord knows I am thankful for that, so I don't see any other way but counseling.

invisiblestepmom's picture

I agree. I totally think mom has Munchhausens and it is rubbing off on SD...I just wish the rest of the world was more aware of MUNCHAUSSENS so someone besides me, my mom and my MIL who all have degrees in psychology, social work and my mom is a liscensed therapist and tey totally agree that BM needs to be diagnosed with it, its a miracle she even got diagnosed with biplar disorder...she would never go get psychiatric help before, at least not until her brother went psycho and she was worried that she would too.She actually went to get meds for bipolar because she was worried she would hrut her kids. hmmmm and all my years of worrying the same thing were me just runnign away with my imagination.

Wicked.Step.Monster's picture

Not sure how Munchausen's would apply here considering SD actually HAD leukemia?

invisiblestepmom's picture

First of all you have to know her to get why i get this sick feeling that she has this and this sick feeling that she would do, or not do something just to make her kids sick...
Mom loved the attention from it so badly that the whole custody arrangment was set up to ensure that SD was with DH when she needed her chemo treatemtns because MIL and DH were worried BM would not give her her chemo drugs just to keep her sick, either for the attention or to use in the custody battle and blame DH for her getting sick.
BM does not do simple things like give her kids tyleonol when the have a fever from a cold or flu, she waits until the fever is spiked so high it could be life threatenting then either rushes them to the ER or calls DH and makes him panicked and worried and he rushes them to the ER. To find out al they needed was tylenol. Like right now when her kids get the a bug she will let the ferver, coughing ,chills, diahrrea, etc... go on for days and say she is worried they have something serious but does not take them to the doctor and does not give them anything OTC to make them feel better she just tells the kids they could have something bad...So then the kids come to our house sick and scared and we take them to the doctor and they have nothign wrong with them but a common cold that could be treated with rest and fluids...

BM also has other mysteriouses illnesses come up for her other kids that never amount to anything. We don't even know if they really want tot he doctor. SKIDS dont really know for sure becasue they were in school. It is very odd. Also ODD becasue BM is the only one to talk about these illnesses, her husband never mentions them, he actually acts as if he never knew anything about it when we ask how his kid is doing after havign such and such a disease...

And the Munchhaussens applies because of BM's own glory seeking for her own cancer threat. We still do not 100% believe that she every really had cancer. She had a hysterectomy to remove precancerous cells, that much we know for sure but the rest is all out of her pathlogical lying mouth so we do not know for sure. Whether she had, or has cancer or not BM has made her kids worry that she is dying. BM has not missed work, she supposedly takes chemo drugs but she is the only person I have ever seen in my life and i have seen a lot of cancer in my life who has not had side effects from the drugs...Oh wait i take that back...she supposedly has had side effect but only when its her turn to drive the kids to practice, but then we will run into this chemo therapy sick ridden mother out shopping the same night she was too sick from teh chemo to drive her son to karate... Her cancers have also been ones that the doctors " just monitor" I mean is ther a cancer like that? Dont they remove the spot if they can or treat it with radiation or chemo, I mean what doctor tells you you have uterine, ovarian, carvical or breast cancers ( all the cancers she supposedly has had including the breast cancer spreading to her back) and says we will just wait and see what happens before they treat it, every one I know has had a treatmetn plan. I'm not a doctor, I have not had cancer myself or my own kid with cancer and I hope to never have to have a kid with cancer, or have cancer myself but what doctor tells you you have cancer then does nothing, because this is apparantly what her doctor has done for her...I though that only happende with terminal cancer that was past the point of treatment and you were given a certain amount of time to live...well its been 5 years since this started and she is still here working everyday like aperfectly healthy human being. SO ITs hard ot believe she has this big scary cancer inside her...
IT's not a joking matter but DH and I used to joke because every time I was pregnant and getting attention for that one of her kids was sick and might have cancer.
The sad thing is one of these days all her lying about cancer will bite her in the ass when someone really does end up with life threatenting cancer. Just hope whoeever it is gets treated for it before it is too late.

Wicked.Step.Monster's picture

That makes MUCH more sense to me now to see that she actually enjoys all the attention from the sickness... I simply can NOT understand that type of mentality, at all! To deny a child tylenol for a fever is nothing short of child abuse!!!

Like I said, I had malignant melanoma, and yes I was monitored for it... AFTER they removed a gigantic chunk of my body!!!

What a big, huge, mess you're in!! I've mentioned perfectson's ex-SM in some of my blogs before, but she was attention seeking like that as well. She had stage 4 cervial cancer, etc etc etc yet never had chemo or anything for it? Riiiiight.... But she was glad to get the sympathy, and the DONATIONS for it!! Some women are psycho!

invisiblestepmom's picture

I know some women are sick and it scares me when you see the stroies about the mothers who give thier kids drajno to make them sick and stuff...yeah the kids did a fundraiser for their mom, however they did not get much in donations, maybe people didn't believe it either...that is the other thing I do not get they are not that much better off financailyl than we are and they aren't complaining about their medical debt which she complains about every other expensei n her life...so that makes me think the cancer is nto real because lets say 5 years into it they should be burried in debt even with the greatest insurance because insurance does not pay for al of cancer treatment...My aunt is six months into her stage four breast cancer treatment with two very goo salaries and decent insurance and they are facint bankrupcy the expenses are so bad...so BM's stories about her cancer do not add up...
I just wish the kids were not a part of it because they will either get sick from her neglect , which we've reported and it comes back unfounded...
Get sick from worry because every bruise , every swollen gland, every headache, every lump, every bloody nose is cancer or a tumor.
Or they will learn to grow up and be just as menatlly ill as she is and only get attentions for their problems. Its sad. Its so sad to see and to have tried to have something done about it and nothing happens so i get to watch these kids spirits detiriorate before my very onw eyes and no one who has the power to stop it gives a damn. Some even favor on the side of mom that if she really is dying now would nto bethe time to take the kids away form her, well how long does it take to die (I AM NOT SAYING I WANT HER DEAD...) but she has been making her kids thing she was dying for five years...

invisiblestepmom's picture

Storm 76 and mommommom... She has been in counselling, and all the counselors say she does not need to be in it. Of course we do not get to go in or see what she is saying so she is probably not honest about her feeling, that or everyone we've taken her too is a total quack...BM will not every particiapte in family counselling, she has no problems, he kids have no problems, etc...and DH also wil nto go but right now it is because of finacnes that he wont go.
Besides dont you guys know that all the unhappienss in the world is the step mom's fault. Well at least according to BM, SS, inlaws, the public, Disney, and the therapist my SS went to for his anger problem...
So I myself am leary of the whole couselling option since last time, issues were not dealt with and I was the blame and focus...

I go to counselling myself just to deal with the stress of my life and to keep a reoccurance of my depression and bulimia and anorexia, so I know the unhappiness in my family is not my fault, every therapist i say tells me that it is not me but that I can not be the one to change it either...if anythign i am the one trying to make everyone happy, or trying ot help everyone make themselves happy.

Storm76's picture

(((HUGS))) to you ISM - I don't know what else to suggest really, apart from trying to change the subject whenever it comes up, but if your DH & BM keep bringing it up then there's not much you can do. Good luck x

invisiblestepmom's picture

DH has finally realized that he has to stop dwelling on it because he sees what it has done to her. Its hard though because we do do all the cahrity things because we want to help other paretns going through it but at the same time, we do Dance Marathongs, and things with the Childrens Miracle Network etc..because those organizatiosn were there for them during this and its a way to give back and help others but at the same time that makes it so much harder for SD to distance herself form it. And keeps her surrounded by the whole cancer thing.

Wicked.Step.Monster's picture

I would think that SD definitely needs some counseling to help her cope with being alive and healthy. As crazy as it sounds, I have a friend who had childhood leukemia too and she was much the same way. Declared free or not for years doesn't matter. My friend lives with a deep deep fear that it will one day return. I, myself, was diagnosed with malignant melanoma in 1997. I was very lucky that I only lost 6 inches out of my hip area and was able to avoid chemo/radiation. I have a fear of it coming back. Cancer brings out fear in people.... big fears, and they are really kind of justified I believe.

As far as being a parent of a child with cancer I am thankful to God I have no idea what it's like. I was the parent of a very very sick baby at birth, which is NOTHING compared to cancer, but that alone changed me. Had perfectson actually had cancer, I would be a freak mother forever I'm sure.

PnutButta's picture

Um...cancer is a big deal. Saying that your SD "beat it from the get go" isn't really a correct statement. You never know how something like that is going to turn out.

Your SD is going off what her mother tells her, and what she hears. She needs counseling.

I cannot even imagine how it would feel if my child's doctor told me they had cancer. I probably would act a little nutsy as well. I don't agree with your BM's behavior, but the fear that the cancer could come back (which is entirely a possibility) could be part of the reason she's acting the way she is.

"To us, family means putting your arms around each other and being there." ~Barbara Bush

invisiblestepmom's picture

I guess saying beat it from the get go was the wrong choice of words...she went into remission as soon as her treatment began and never got it back. But that is not the story BM will tell you, she has to add drama to it and every one who was there will say the worse this girl went through was the spinal taps and getting tired form chemo, but even tired she did nto stop going. BM makes it sound like she psent years in the hospital fighting for her life from her death bed. Yes she did fight the cancer,beat it and won but it was not this horror story BM makse it out to be. However any cancer for a child is horrible, and a horrorstory in and of itself, so horribkle I don't know why one would want to lie to make the horro story worse. Seriously the cancer was bad enough you dont need to exaggerate to make it worse she'll get sympathy with out without the dramatization. I understand why SD would have memories of being scared hospital s are scary for kids, cancer is scary for kids, but my SD can't get over it because the adults in her life chose to make it worse tahn it was. Even from day one BM was making it worse by telling her she could die just because other kids had died. Yes death is a reality with childhood leukemia but SD's doctors did not ever say she was dying, so mom should not have...

Second if mom was so damn worried about her dying mom should have protected her more...If my child had cancer I would be a germo phob and protect my kids from any infection. BM did not. If people were sick, BM would still bring SD around them when doctors had told her not to, When SD was in treatment doctors did not want her ears pierced becasue a simple infection like that could bring the cancer out of remission but what did BM give her for her birthday agaisnt medical advice, pierced ears, then did not take care of them. Then BM let this little girl under chemotherapy who was to waer a mask in public go aroudn with out it, and pull pop tabs off any disgusting germy can she could find to collect them for the RONALD MC DONALD HOUSE moms favorite home ever...and to this day SD still does not know how to wash her hands. Hmmm lesson # 1 given when you have a kid on chemo.

PnutButta's picture

Our BM is really good at exaggerating things too. One of the skids had a cold last week, and it turned into BM telling everyone skid had swine flu.

I've told my DH that if we found out BM had munchausen, I would not be surprised in the slightest bit. So, I know where you are coming from in that respect.

I re-read what I wrote and apologies for my post sounding so harsh, it was not my intention.

"To us, family means putting your arms around each other and being there." ~Barbara Bush