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Elder care and family problems*LONG*vent*

iamlosingit's picture

Backstory:
My mom is 55 and has a terminal illness that is now causing her to have mental issues. She has been arrested twice due to these problems and evicted from her apartment. I was a PCA for my younger brother for over 9 years due to his illness as well(also terminal). Since my mom was sick, she took advantage of this; As my parents spiraled downhill towards eventual divorce I became the household care-giver: grocery shopping, laundry, cooking, cleaning, conferences, school events, etc. They needed the help, I couldn't lose income helping them and continue to live myself, so even though it sucked I got two other jobs to make ends meet while continuing to care for them. As my brother got older, his hourly care started to decrease. My job was to teach him to be more independent for adulthood. My mother wouldn't allow this to happen and used me as a crutch for him. Eventually the services were taken away since he became a "legal adult" and everything became a disaster.
After the divorce and my job ending; my brother started getting in trouble with the law, was arrested once, and after being released went to live with my grandparents because my mom couldn't "handle" him anymore. My mom stayed at her income based apartment by herself and essentially lost her mind in less then two years. She stopped taking her medication and was arrested twice for trespassing in apartments that weren't hers. During this time our family tried to talk to my grandmother into allowing us to place my mom in either a memory care facility or in a hospital to get her mental help. Nobody likes the idea of this, but she is becoming more violent and refusing to take her medication. After dealing with phone calls from the property saying my mom is out of control, they evicted her and she ended up staying at my grandma's also. Before you ask, yes I know Dh and I just purchased a house. We also work ridiculous hours and have no spare bedroom as ss room isn't very big and we have a schedule with him. My mom is not able to be alone unsupervised; she doesn't sleep, she wanders, starts conflict with strangers, and given the area we live she will either get herself arrested, shot, or worse if she wanders by herself. When we just moved in she yelled at one of our neighbors for saying "hi" to us at our housewarming. That took a lot of explaining and apologies.
Since she has been living at my grandparents things have been hard. They are in their 80's, retired. My brother tries to get jobs but can never seem to get enough hours. Thanks to his DUI and driving without a license he relies on rides to work. He is 22 y/o now, and thanks to being stupid at 17 he will forever be paying for it. My grandma is slowly realizing that she is not capable of giving my mom the care she needs, but absolutely refuses to have her placed in a group home or memory care facility. This leads to her calling other family members and complaining, then they in turn call me and scream at me to "do something about my mother". I get these calls about every other day. I don't know what to do. I have tried looking up care facilities in my state but my mom has no income. She has state healthcare and food-stamps. The little bit of money she could get approved for to use for housing is the worse type of section 8 housing imaginable and has no mental health care. In other words, we could find her another apartment but in all likelihood she would get evicted again in a very short time. I would let my brother move in with us temporarily to get back on his feet and give my grandparents a break but my grandmother is acting like they (brother+mom) are a package-deal. Now my brother might be moving in with our father but that hasn't been fully discussed and is not set in stone. Which still leaves me with finding my mother somewhere to live.
This Month:
The first of the month I was informed that for obvious reasons my grandparents aren't hosting Thanksgiving this year. Instead it is happening at my cousins house over two hours away. We already informed my family that we are going to DH side this year. He lost his grandfather just last month and his mother was asking if we could join them this time at her studio apartment just the four of us. Since DH has gamely gone to my family gatherings for the last 7 years due to lack of planned gatherings on his side of the family, it was a refreshing change to be invited to something planned by his side this year. We agreed and I informed my family of our decision early November. Also given our current financial situation we don't exactly have the extra gas money to be driving over 2 hours away either.
Just last weekend I received a text message from my cousin who is hosting Thanksgiving stating "Work it out honey, you get your mom and brother for Thanksgiving..maybe one of your brother's friends will drive them to your house? _____ is bringing grandma and grandpa here."
So she's telling me that someone else in our family that is going to thanksgiving is picking up my grandparents but refusing to bring my mom and brother too? I called to get the details and was pretty much told that one relative is spending the night at a hotel nearby with his wife and kids and not going home, and another relative (couple) is bringing their "trained guard dog" and since he is still in one of the stages of his training nobody can ride in the back with him..(don't ask. This family member has obscene amounts of money and say its cheaper to have a guard dog vs hiring security). The final family member duo that is going wasn't going to go originally due to the distance but was forced by his MIL/my aunt. My cousin is acting like the entire thing was "no big deal" because since we aren't going to her house the least we can do is drive over and grab mom and brother, and magically pull a Thanksgiving dinner out of our a$$....I don't know what to think. Then there's the fact that since they all live together, mom and brother will clearly see grandma and grandpa getting picked up and realize they are being left behind...I mean SERIOUSLY who does that??? The holidays are the only time our whole family really gets together...and they are going to think they are being shunned. DH and I are B.R.O.K.E....DH mom lives less then 20 minutes away and is providing a small meal. Again, she lives in a studio apartment. I can't just pull money out of my behind to pay for gas to get them and then drive over and stuff everyone in a studio apartment for a dinner we aren't even hosting. This unforeseen act has me dreading the holidays this year. I don't know how to fix it. I have literally felt sick to my stomach since Sunday. When I tried to tell my cousin that DH mom doesn't have a large enough space for all of us she told me to "figure something out". I feel so bad but we are SO broke right now, our utility bills are coming up and DH is actually doing everything he can to help and start paying me back. What do I do?

Comments

notasm3's picture

You have already made other plans with your DH's family. You do not have to obey your cousin's orders.

What you do is - follow thru with your plans with your DH.

iamlosingit's picture

but she's telling me if I don't that nobody is getting my mom and brother for the holidays. My mom is mentally ill but not stupid, they'll be devastated. They love the holidays. I feel obligated but I just can't afford it.

notarelative's picture

Do not even consider going to pick up your mom and brother. If you do you might find yourself with them permanently.

You have plans with DH'S mom. Do not change them. Your cousin is the one who decided that only half of the house dwellers would be at her Thanksgiving. If there is any fallout, it is for the cousin to deal with.

Stop answering your phone unless you know who it is. Do not answer calls from any of your family members until this works itself out (after the holidays).

notsobad's picture

Don't allow this family member of yours to make you feel guilty.
You are NOT responsible for you mother or brother, not emotionally, financially or physically.

Your Grandparents are the ones choosing to go out for Thanksgiving. They are the ones who chose to have your brother and mother live with them. They are the ones choosing to keep your mother there and not put her in a home where she could get the help she needs.

NONE of this is on you.

When other family members tell you that you are responsible and must do something tell them that they can just as easily do something too.
They can "work it out" themselves.

iamlosingit's picture

My mom has two sisters. The one that lived near her before she was evicted became her "power of attorney". Now this sister is having health issues of her own (she won't tell us what it is) and pushed the power of attorney onto the oldest sister. This is the sister with money, she doesn't work so she is available to help out the grandparents/her parents more but after 4 months of having the responsibility she is getting tired of it and telling me I need to take over the power of attorney and "fix this" before she goes to her vacation home for 1/2 the year starting after Christmas. The cousin hosting thanksgiving wants to pretend she is our rich aunt and have a "picture perfect" holiday in the ridiculously custom new home she and her husband just built over 2 hours away. I guess this "perfect holiday" doesn't involve my mom or brother. I guess all the years I was a PCA for both of them isn't enough to them, I am responsible because "she is your mother". I'm in tears as I type this its such a relief to be able to share and not get screamed at I was starting to think I was a horrible person because I don't know how to fix it. It's not easy to find housing for someone that has no income other than from the state I wish they could understand.

BethAnne's picture

Talk to your grandparents and see what they suggest.

Failing that, see if mil would mind hosting thanksgiving at yours (I presume it is larger) with your mother and brother too. Chip some money in and ask your mom and brother to chip in some money too to cover the cost of the extra food. If everyone pays a little it should hopefully be cheaper for you than gas.

If neither of these work, see if there is a community thanksgiving event your mom and brother can attend.

iamlosingit's picture

brother has no license or car and has been giving most of his money to the grandparents for rent. He works part time so it isn't much. Mom can't drive she lost her car when she was arrested and in one of her "fits" shredded her drivers license (don't ask) so a community thanksgiving is out unless they can walk.
MIL doesn't drive either that's why we were going to her studio apartment. In order to involve everyone it requires a lot of driving, the gas expense alone is about what we would spend going to my cousins which is what we can't afford.
My mom is on assistance and most of that is going to her parents to help them pay for food since she is living there. I'm guessing my grandparents don't even know what's going on because I'm sure my cousin called and told them that I was having Thanksgiving. They are so ready to have a break without my mom/brother I'm sure they didn't even give our financial situation a second thought.

hereiam's picture

Your grandparents are okay with just leaving their daughter and grandson alone for the holiday? Or do they even know that your mother and brother are being excluded? Your cousin sounds like a bitch, by the way.

Your mother and brother are not your responsibility, however, I am very familiar with how guilt works.

How far from you are your mother and brother? Can DH's mom come to your house? Maybe all of you can pull your resources together and have a dinner at your house, since there is more room there.

I'm sorry you are dealing with all of this.

iamlosingit's picture

My cousin is a very self-serving person. I'm starting to see sides of my family that I didn't know existed.
I kind of did a similar reply to your question above your comment. This is why I'm having such a hard time with this. I'm guessing my cousin gleefully told our grandparents that since DH and I weren't going to her house that it would be "no trouble" for us to pick up my mom and brother. Grandma and grandpa are so ready for a break from them they probably didn't give a second thought as to what our plans were. Nobody has called us about Thanksgiving except my cousin. The grandparents driving has never been an issue because they always hosted the holidays. This is the first holiday we haven't had at their house in years. My poor mom and brother are probably completely in the dark about this and assuming someone is giving them a ride to my cousins.

BethAnne's picture

The only way solutions are going to be found are if you are open and honest with everyone about your prior plans and your tight finances. Either that or find a bit of extra money. Do a one off job for someone or sell something?

To me it sounds like a big mess of assumptions about what everyone can and should do without anyone actually talking about it. It may not be your job or your responsibility but the happiness of your mom and brother over the holiday obviously weigh on you so as much as others say you should leave it up to everyone else, I doubt that you can.

notsurehowtodeal's picture

You need to get the power of attorney for your Mom and then get her in some sort of a nursing home or care center. Since Mom has no income and is on assistance, she may qualify for Medicare. You might also call a Hospice agency - she may qualify for some assistance there. I don't think her mother should be making these decisions - you should after you consult with your Mother.

You have my sympathies. When my Dad was terminal, he had mental issues and it made everything more difficult.

iamlosingit's picture

She has something called Medic-aid I guess they were turned down for medicare because they are terminal. This is according to her current P.O.Attorney. Nursing home wont work because the ones I've called said they can't "force" anyone to take their pills if mom doesn't want to take them they can't do anything about it. Without the pills she becomes violent and they said they will kick her out if that happens. It's sounding like our only option is a psychiatric hospital but my grandma also feels guilt for this and refuses to have her admitted. I tried calling a psych ward about getting her picked up and they said if my grandmother refuses to let them in they can't do anything. I feel like a snake eating my own tail and getting nowhere. My mom doesn't recognize her mental issues and thinks she is okay to get back into regular assisted living. Since she was evicted from one already nobody will take her and I can't get her to understand this. She has "fits" and has no recollection of what happened.

iamlosingit's picture

I should also add that she was put in a 72 hour hold at a hospital before the arrests happened at her apartment and they released her without calling anybody even though she had her sister listed as her power of attorney and emergency contact.
By the time her sister found out she had been released and drove there in a panic she was found happily walking on the side of the road about two miles away from the hospital going the wrong direction.

stepmomof1biomomof1's picture

I work for a hospice. You only qualify if you have a terminal diagnosis of 6 months or less.

iamlosingit's picture

I know she is terminal but I also know she isn't 6 months or less. Thank you for the info, I was unfortunately getting hopeful at new information.

stepmomof1biomomof1's picture

I would call every hospice and home health agency in your area. Ask to speak to a social worker. Explain the situation and tell them you need help. They should know some resources for you.

They may not be able to actually help you since you do not have the power of attorney. Tell them that the aunt is wanting you to take it over, that will make a difference.

iamlosingit's picture

She fired her social worker last month...do I need Power Of Attorney to get another one? I'm scared to take on the POA because based on what I've read I need to be available 24/7 in case mom has problems and I need to sign any and all documents she has currently and sign for things she will need like bank stuff and doctor appointments. The last two sisters that attempted it don't work so they were available at the drop of a hat if needed. Maybe I should post another blog asking if anyone has any helpful links in regards to power of attorney. Everything I've read so far is overwhelming and sometimes contradicting with words. I work 50 hours+ each week and sometimes weekends, I'm worried I won't be able to do a good enough job and she will suffer for it.

stepmomof1biomomof1's picture

People call our hospice all the time asking for advice, our social workers will give advice most of the time. They will try to point you in the right direction. If you don't get enough help then call someone else.

Also try calling a council on aging in your area.

notsurehowtodeal's picture

A Power of Attorney can be worded any way you want it to be. I carry both a legal and medical one for my Mom. She can still sign anything and make decisions, I can make them as well. I use it when she is unable to do something. You would need to contact a lawyer and figure out what would work for you. Your situation is different than mine in that you might need to make her do something she doesn't want to do.

notsurehowtodeal's picture

Meant to say Medicaid, not Medicare. Medicare is for over 65 - but still doesn't cover in-patient long term care.

lieutenant_dad's picture

You have told the people who can make decisions what the best choices are. They refuse to accept those choices, and it's NOT your responsibility to convince them or carry their guilt.

No is a complete sentence. You can say no and shouldn't feel guilty.

If they think you should do something, say "this is my plan; let me enact it or stop asking for my help".

This is NOT NOT NOT your problem. Do NOT feel guilty about this. A solution exists that no one in power wants to take. That's their problem, not yours.

ESMOD's picture

First issue with the most urgency is Thanksgiving.

Call grandma and grandpa. Explain to them that you have other family obligations at Thanksgiving and are not going to be home. Tell them that if they go to the cousin's celebration, it will result in their leaving their daughter and grandson behind. While that is sad, unfortunately YOU can do nothing to help since you are going to be out of town. plans made. cannot be changed for any reason.

Tell cousin that you will not be able to have your mom and brother at the house because YOU won't be at the house. period. So... they may want to rethink the plans to take the grandparents. (maybe see if older sister could do something.. at least ensure they have a meal at their home or a way to get to a group situation..)

Now on to the elephant in the room. Your mother is not mentally capable of handling her life and it doesn't appear her parents are truly up to the task and her son isn't enough help either. It may require you getting her declared incompetent, but you can probably take control if need be.

There should be a county department on aging or some such resource and you should go and see how they can help with all the issue. Honestly, though your grandparents may not WANT your mom in a home.. it sounds like it might be the place where she could get the best care and help.

ESMOD's picture

Oh.. and also, my mother suffered dementia and did have to go into a home care situation. It was tough, but ultimately it was the safest place for her to be. Hugs for all you are going through.

SM12's picture

Do not change your plans and do not listen to your cousin. The easiest thing to do is go be with your DH's family and bring back a few plates of food to take to your mom and brother.

notarelative's picture

(((iamlosingit)))
Unfortunately, there seems to be no good solution to this. Your mom won't accept the help she needs. The only way to force her into help seems to be if she is arrested.

I think it's time for the Serenity Prayer:
God, grant me the serenity to accept the things I cannot change,
Courage to change the things I can,
And wisdom to know the difference.

You can only do what you can do. You have to somehow let go what you cannot control.

Have you considered joining a NAMI family support group?

iamlosingit's picture

I would love a support group, I didn't know any existed that's why I posted on here. Just realized I probably should have put "OT" on the title sorry. What is NAMI?

Acratopotes's picture

You are an adult HOn, for the first time you will be with DH's family, keep your plans, you are not responsible for your mother or your brother.

You can simply tell that bitch cousin, I've asked through the years that we get Mum and brother in some kind of facility where they will be cared for and live happily but every one told me NO, I'm sorry but I'm not their keeper, I do not have POA and I can't make the decisions.
The family never supported me when I asked for facility care, ...